Protecting partient confidentiality-final report (2002)

The Confidentiality & Security Advisory Group for Scotland

http://www.sehd.scot.nhs.uk/publications/ppcr/ppcr-00.htm

http://www.sehd.scot.nhs.uk/publications/ppcr/ppcr.pdf

[CONTENTS]

1. FOREWORD ...4
2 . INTRODUCTION ...6
3 .PROTECTING THE RIGHTS OF THE INDIVIDUAL ... 8

THE REGULATORY ENVIRONMENT
4 USES OF PATIENT IDENTIFYING INFORMATION ... 12

OBLIGATIONS OF NHSSCOTLAND AND INDIVIDUALS
5 THE WAY FORWARD ...17
6 INFORMING THE PUBLIC AND PATIENTS ...19
7 OBTAINING CONSENT ...24
8 ACCEPTABLE ANONYMISATION ...32
9 SECURITY OF HEALTH SERVICE INFORMATION SYSTEMS ...37
10 NEW LEGISLATION ...38
11 DELIVERING CHANGE ...42
12 THE PRINCIPLES OF CONFIDENTIALITY ...44
13 SUMMARY OF CONCLUSIONS AND RECOMMENDATIONS ...46

A ANNEX ...51
CSAGS – AIM, TASKS AND COMPOSITION
B ANNEX ...52
DEFINITIONS AND GLOSSARY
C ANNEX ...54
CONCLUSIONS AND RECOMMENDATIONS FROM THE
ACCEPTABLE ANONYMISATION FEASIBILITY STUDY

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PROTECTING PATIENT CONFIDENTIALITY
Final Report

CONTENTS

1 FOREWORD
2 INTRODUCTION
3 PROTECTING THE RIGHTS OF THE INDIVIDUAL -THE REGULATORY ENVIRONMENT
4 USES OF PATIENT IDENTIFYING INFORMATION - OBLIGATIONS OF NHSSCOTLAND AND INDIVIDUALS
5 THE WAY FORWARD
6 INFORMING THE PUBLIC AND PATIENTS
7 OBTAINING CONSENT
8 ACCEPTABLE ANONYMISATION
9 SECURITY OF HEALTH SERVICE INFORMATION SYSTEMS
10 NEW LEGISLATION
11 DELIVERING CHANGE
12 THE PRINCIPLES OF CONFIDENTIALITY
13 SUMMARY OF CONCLUSIONS AND RECOMMENDATIONS
A ANNEX CSAGS - AIM, TASKS AND COMPOSITION
B ANNEX DEFINITIONS AND GLOSSARY
C ANNEX CONCLUSIONS AND RECOMMENDATIONS FROM THE ACCEPTABLE ANONYMISATION FEASIBILITY STUDY