발행년 : | 2005 |
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구분 : | 국내학술지 |
학술지명 : | 한림법학 Vol.16 |
관련링크 : | http://www.riss.kr/link?id=A76369733 |
유전자검사와 유전자치료에 관한 쟁점사항과 사회적 수용도 = Issues of Genetic Test, Gene Therapy and National Survey
초록 (Abstract)
Genetic technology including genetic test and screening, gene therapy and
genetic enhancement is developing rapidly. As genetic technology and other
technologies relevant to human biology are developed, society will faced a host
of complex ethical, legal, and social issues. One of the most complex sets of
issues involves our choices over who will access to these technologies. There is
a great concern that the mischiefs of genetic technology may outstrip its
benefits. In addition, another question has been raised who should benefit from
the development of genetic technology. Problems of distributional justice arise
under the condition of scarce resources. Whether achievements of genetic
research should be distributed according to need or ability-to-pay needs to be
answered.
The aim of this study is to investigate Korean citizens' perception
on genetic technology and distributional justice, specifically focusing on
application and limit of genetic test and screening, gene therapy and genetic
enhancement.
A national survey was carried out using telephone interview from
April 20th to May 20th in 2004. A total of 1,004 citizens (male : female = 48.2%
: 51.8%) were randomly sampled in proportion to the number of population of 16
regions. The questionnaire consisted of 16 questions about overall impact of
genetic technology, application of genetic test, potential for discrimination on
the basis of genetic information, permissibility of and intent to use gene
therapy, access to genetic technology, and so on.
First, 71.0% of the
respondents perceived that the development of genetic technology would ensure
healthier life whereas 17.8% were worried about its adverse effects. In terms of
application of genetic test, 90.3% responded that genetic test would be helpful
for finding missing children 71.2% for criminal investigation. 75.9% and 56%
were worried about the adverse effects if genetic information was used for
recruiting and subscribing to insurance, respectively. Given the benefits that
people will obtain from genetic technologies, people will not be able to satisfy
their demand.
In the past, society encountered shortages of supply of medical
services. Sooner or later certain conditions must be satisfied in order for
someone to gain access to genetic technologies.
Overall, Korean citizens seem
to have both positive and negative perception on the development and use of
genetic technology. They have intention to use genetic technology for treating
diseases while they feel concern about potentials for genetic discrimination or
genetic class. Achievements of genetic research should be distributed according
to need or ability-to-pay needs. The government needs to play an important role
in ensuring equal access to genetic technology for every citizen.
목차 (Table of Contents)
Ⅱ. 사회적 수용도 분석을 위한 조사 개요
Ⅲ. 유전자검사에 관한 쟁점사항과 사회적 수용도
Ⅳ. 유전자치료에 관한 쟁점사항과 사회적 수용도
Ⅴ. 분배정의에 관한 쟁점사항과 사회적 수용도
Ⅵ. 결론
ABSTRACT