Increasing Public Involvement in Debates on Ethical Questions of Xenotransplantation
주관연구기관 | Institute for Advanced Studies (IHS), |
---|---|
발행년 | 2004 |
키워드 | Xenotransplantation |
관련링크 | http://www.ihs.ac.at/departments/soc/xeno-pta/final.pdf |
Increasing Public Involvement in Debates on Ethical Questions of Xenotransplantation
Projektbericht/Research Report
Institute for Advanced Studies (IHS),
155p.
http://www.ihs.ac.at/departments/soc/xeno-pta/final.pdf
[목차]
Foreword vii
0 Executive Summary 1
0.1 Objectives ...
1
0.2 State of the art in Xenotransplantation ... 1
0.3
Xenotransplantation debates in Austria, Germany and Spain ... 3
0.4
Neo-Socratic Dialogue ... 5
0.5 Participants ... 6
0.6 Process ...
7
0.7 Assessment ... 8
0.8 Conclusions ... 11
1 Objectives 14
1.1 The ethics of xenotransplantation as a decision-making
problem ... 14
1.2 Goals ... 15
1.3 Research design ... 16
2 State of the art 19
2.1 Definition and promises of xenotransplantation
... 19
2.2 State of the art ... 20
2.3 Ethical questions of
xenotransplantation ... 22
3 Comparison of Xenotransplantation Debates 24
3.1 Goals ... 24
3.2
Methods ... 24
3.3 Organ transplantation and organ donations by human donors
... 27
3.4 Xenotransplantation Research in Medicine and the Natural Sciences
... 28
3.5 Industry ... 30
3.6 Parliament and government ... 31
3.7
Advisory Bodies and Position Papers ... 32
3.8 Research on ethical, legal and
social aspects of xenotransplantation ... 34
3.9 Patients ... 35
3.10 NGOs
... 36
3.11 Media ... 37
3.12 Public Attitude ... 40
3.13 Configuration
of xenotransplantation debate in Austria, Germany & Spain ... 45
3.14
Summary ... 47
4 Neo-Socratic Dialogues on the ethics of xenotransplantation 49
4.1
Description of the Neo-Socratic Dialogue method ... 49
4.2 Organisation of
the Dialogues ... 53
4.3 Evaluation methods ... 54
4.4 Participants ...
54
5 The dialogue process 65
5.1 Comparative description of the dialogues ...
65
5.2 Assessment of the moderation ... 71
5.3 Participant’ assessment of
the group ... 74
5.4 Problems arising during the dialogues ... 76
6 Assessment 81
6.1 General assessment ... 81
6.2 Which experiences did
the participants have? ... 102
6.3 Changes in attitude ...111
7 Conclusions 118
7.1 Raising awareness for the ethics of
xenotransplantation ...118
7.2 To discuss the ethics of xenotransplantation
... 120
7.3 Clarification of various actors’ responsibilities regarding the
ethics of xenotransplantation ... 121
7.4 To inform decision makers about the
ethical basis and consequences of xenotransplantation ... 122
7.5 Consensual
policy options regarding ethical problems of xenotransplantation ... 123
7.6
Improvement of communication patterns and capability of coping with ethical
questions arising
from modern science and technology ... 123
7.7 Final
conclusions ... 124
8 Appendix 127
8.1 Dissemination activities ... 127
8.2 Interview
partners in Austria ... 130
8.3 Interview partners in Spain ... 131
8.4
Literature ... 132
8.5 Survey Quality of Life (European Commission: 2001) ...
139
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